Chronic Pain

December 15, 2009 by Tellie  
Filed under My Inner Kindlings

Yes, I’m still dealing with whatever mystery illness I have.   It still has yet to be diagnosed by a doctor, and it’s just a literal pain in the rear end  …..and the shoulder,  neck, and the knees, head, etc.

I use to spend a lot of time googling possible illnesses, but I haven’t done that in well over a year.

I use to watch every episode of Mystery Diagnosis hoping that I’d find the answer, and I don’t do that anymore either.

Iguess I’ve sort of given up hope.  I’ve lost faith in the medical system and fear I will never get a diagnosis.

I don’t tell many people about how often I’m not feeling well. I don’t need sympathy. And I don’t like complaining.  I’m pretty sure it’s good to talk about your problems with someone every once and a while, yet that’s just not me.  I don’t like burdening other people with my problems. I don’t like it when other people worry…especially about me.

I don’t think anyone understands exactly how much pain I am actually talking about, not even my parents.  I’m talking about enough pain to make me cry.  And trust me when I say this, it takes a lot to make me cry. I’ve even thought about calling 911 several times this year especially on that one day I was in so much pain I could barely walk.

So I’m guessing it’s time for me to go back and start looking for an actual diagnosis.  This means going to the doctors.  I hate doctors. Because honestly, I’m not fearful of finding something wrong; I’m more fearful of finding nothing wrong. So I’ve scheduled a doctor’s appointment for Friday. The first day of my break.

In the past I’ve gotten possible diagnoses of multiple sclerosis, depression, lyme disease, parkinsons disease, arthritis, hypochondria, hyperchondria (I made that word up but seriously one doctor told me I don’t care enough about my health), and absolutely nothing at all. In the back of my mind I’ve always wondered if I have fibromyalgia, it’s the only thing that fits, but no doctors have suggested it…I will definitely bring it up at my next appointment.

Well what ever it is I know it’s not nothing, and I’m pretty sure it’s not depression…because other than this illness, I’m absolutely loving my life!  I love my friends, I love the fact that I’m about to graduate next semester, I have an amazing family, and things are just so awesomely fantastic, well, almost…except for the fact that I can’t remember the last I was 100% pain free.

And even if the appointment I have scheduled for Friday doesn’t work out, at least I’ll get the malaria pills I need for my trip.

  • I am truly sorry for your pain. I hope you find the treatment soon. You are a very strong person.
  • KristinaP
    Tellie, I am so glad you commented on my blog! Your blog has not been updating on my Reader, apparently, and I had to readd it.

    I hope you find a diagnosis. I've had various health problems since about June, and it's frustrating.

    Happy holidays!
  • Wow I'm so sorry that you are still not feeling well. I really hope that you find out what is wrong soon so that you are able to treat whatever it is and start feeling better and get some relief.
  • I almost hate to say this because I know you MUST have already heard about this from so many people during your search for an answer. But many years ago I remember seeing a news story on chronic pain and there were a couple of women featured who described just what you're dealing with. There are groups out there researching it. Here's a link to one: http://www.ninds.nih.gov/disorders/chronic_pain.... Again, I don't mean to be irritating at all. I just thought I'd add it just in case you had never seen this site. I truly hope you do find an answer soon. It's a double-edged sword: you don't really want to find out something is really wrong; on the other hand, continually not finding anything to explain real symptoms just makes you feel crazy. Best wishes to you.
  • You are very young, but have you been tested for Fibromyalgia, or one of the other auto immune disorders? My mom has fibro, and though her symptoms did not get real bad until about age 50, she can remember not feeling well, with pain symptoms, for many years before that. Just a thought, not trying to interfere.
  • I hope they figure out how to make you feel better.
  • ckane
    i was just reading this and before I got to the part where you listed the things that your docs had tested for...i was thinking fibromyalgia.
  • Have you ever been diagnosed with Fibromyalgia? Do you feel that sometimes your brain is dragging through the mud? Doesn't exercise help it or make it worse?
  • Awww I'm sorry to hear that. I would say don't give up, there must be a reason - keep looking!
  • I feel your pain! After a car accident in high school, I lived with a constant headache that progressed into debilitating migraines, at least, 3 days a week. I saw every specialist, missed 60 days of school my senior year of high school, and finally, ended up in the hospital with a 106 fever my sophomore year of college. It was eventually diagnosed as a torn cranial nerve. Not much they can do about it, but at least, I know. It's way better to actually know what is going on! Good luck!
  • Sure hate to hear that you live with chronic pain also. Mine started at age 12 and hasn't stopped since. I was finally partially diagnosed at age 20, but still trying to figure out everything. Never give up...don't live like this if you don't have to. Good luck and keep me posted.
blog comments powered by Disqus